Are patients' preferences for information and participation in medical decision-making being met?

PUBMED ID:

20621948

PubMed - indexed for MEDLINE

Authors:

Pardon K, Deschepper R, Vander Stichele R, Bernheim J, Mortier F, Schallier D, Germonpré P, Galdermans D, Van Kerckhoven W, Deliens L

Institution:

End-of-Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium. koen.pardon@vub.ac.be

Title:

Are patients' preferences for information and participation in medical decision-making being met? Interview study with lung cancer patients

Source

Palliat Med. 2011 Jan;25(1):62-70. Epub 2010 Jul 9

Abstract

We examined the degree to which newly diagnosed patients with advanced lung cancer wanted to be informed and involved in medical decision-making, and whether the patients felt their preferences were met. Patients from 13 hospitals in Flanders were interviewed with a standard questionnaire. A total of 128 patients (68%) participated. Of the patients who wanted to be informed about life expectancy, half (53%) reported they were informed, and of those who wanted to be informed about palliative care and end-of-life decisions, 25% and 31% said they were informed, respectively. With regard to participation in medical decision-making (in general, about treatment, transfer or end-of-life), patients who preferred the doctor to make decisions or those who preferred to make the decision themselves often achieved this (in their perception), while patients who wanted an in-between position with some involvement, often did not. To conclude, preferences of patients with lung cancer for information concerning delicate topics and for shared decision-making with the physician were not well met.