Quality of life for children with life-limiting and life-threatening illnesses

PUBMED ID:

20826494

PubMed - indexed for MEDLINE

Authors:

Rogers SK, Gomez CF, Carpenter P, Farley J, Holson D, Markowitz M, Rood B, Smith K, Nigra P

Institution:

District of Columbia Pediatric Palliative Care Collaboration. srogers@dcppcc.org

Title:

Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care

Source

Am J Hosp Palliat Care. 2011 May;28(3):161-70. Epub 2010 Sep 8

Abstract

The care of children in the U.S. with life-limiting illnesses is inadequate. Misallocated resources, flawed assumptions and models of care, and a lack of appropriate professional education foster a costly, inefficient system that falls short of its true potential. This article details the evolution of a regional, shared approach to address these issues, the District of Columbia Pediatric Palliative Care Collaboration (DCPPCC), and includes its evolution, preliminary clinical results, and assessment of barriers encountered.