FAST FACT AND CONCEPT #32
Author(s): James Hallenbeck MD
Grief is a normal response to loss, any loss: a job, a limb, a life. Clinicians have an important role in facilitating healthy grieving, and observing for signs of complicated grief. Grief experienced by dying patients and loved-ones prior to and in anticipation of death is called anticipatory grief (or mourning); grief of loved-ones following a death is termed bereavement. This Fast Fact provides an overview of grief and bereavement.
Grief is a normal response to loss that involves processes and tasks at emotional, cognitive and behavioral levels. The initial shock of learning of impending or actual loss evolves into a process of creating a new relationship between the grieving person and the person (or object) of loss. Grief tends to be experienced in waves, triggered predictably by new losses (such as a loss of functional status) or unpredictably, by seemingly trivial events. Over time the intensity of these waves tends to decrease. Grief does not have a set schedule; individuals progress through the grief process at different speeds. However, no progress, getting stuck in one phase of grief, can be cause for concern.
Anticipatory grief for patients involves reviewing one's life; for families/friends it means looking to a future without the dying person. Byock has suggested that patients and families may wish to say to each other, in some way, "Forgive me, I forgive you, thank you, I love you and good-bye." People from different cultural backgrounds may differ in terms of how and what they want to say or do in preparation for death. Not knowing or acknowledging that a person is dying will likely delay or interfere with normal anticipatory grief. Grief reactions in dying patients may be confused with pain, depression, and even imminent death (e.g. social withdrawal may imply pain, depression, or anticipatory grief).
Note: Neither pain nor depression are normal aspects of the dying experience, they should be carefully evaluated as both are treatable (See Fast Fact #43). Grief tends to be experienced as sadness, whereas depression is associated with lack of self-worth. The question, "Are you sad or are you feeling depressed?" may help begin a dialog to help you distinguish between grief and clinical depression.
What can the physician do to facilitate normal grieving?
Be honest when discussing prognosis, goals and treatment options; nothing inhibits normal anticipatory grief more than ambiguity from the physician. Listen; open the door to meaningful discussion. Ask, "How are you doing with this recent news?" “Are you scared?" "Tell me what is going through your mind?” Ask for help – you are not the only health professional available to help with grief. Contact a nurse, social worker, chaplain or psychologist/psychiatrist if you need assistance. Assess for and aggressively treat pain and depression.
- Byock I. The Four Things that Matter Most. New York, NY: Simon & Schuster; 2004.
- Markowitz AJ, Rabow MW. Caring for bereaved patients: "All the doctors just suddenly go.” JAMA. 2002; 287(7):882.
- Rando TA. Clinical Dimensions of Anticipatory Mourning. Champaign, IL: Research Press; 2000.
Fast Facts and Concepts are edited by Drew A. Rosielle MD, Palliative Care Center, Medical College of Wisconsin. For more information write to: email@example.com. More information, as well as the complete set of Fast Facts, are available at EPERC: www.eperc.mcw.edu.
Version History: This Fast Fact was originally edited by David E Weissman MD. 2nd Edition published August 2005. Current version re-copy-edited March 2009.
Copyright/Referencing Information: Users are free to download and distribute Fast Facts for educational purposes only. Hallenbeck J. Grief and Bereavement, 2nd Edition. Fast Facts and Concepts. August 2005; 32. Available at: http://www.eperc.mcw.edu/fastfact/ff_032.htm.
Disclaimer: Fast Facts and Concepts provide educational information. This information is not medical advice. Health care providers should exercise their own independent clinical judgment. Some Fast Facts cite the use of a product in a dosage, for an indication, or in a manner other than that recommended in the product labeling. Accordingly, the official prescribing information should be consulted before any such product is used.
ACGME Competencies: Medical Knowledge, Patient Care
Keyword(s): Psychosocial and Spiritual Experience: Patients, Families, and Clinicians