# 038 Discussing Hospice, 2nd ed

FAST FACTS AND CONCEPTS #038 PDF


Author(s): Charles F von Gunten MD, PhD, FACP

Introduction Hospice discussions with seriously ill patients should always take place in the context of the larger goals of care, using a step-wise approach. Fast Facts #82, 87, and 90 discuss the hospice benefit and regulations in more detail.

  1. Establish the setting
    • Ensure comfort and privacy; sit down next to the patient. Ask if family members or others should be present. Introduce the subject: I’d like to talk with you about the overall goals for your care.
  2. What does the patient understand?
    • Ask an open-ended question to elicit patient understanding about their current health situation. It is important to get the patient talking – if the doctor is doing all the talking, it is unlikely that the rest of the conversation will go well. Consider starting with phrases such as: What do you understand about your current health situation? Or, What have the doctors told you about your condition?
    • If the patient does not know/appreciate their current status this is time to review that information. An informed decision about hospice is only possible if the patient has a clear understanding of her or his illness and prognosis.
  3. What does the patient expect?
    • Next, ask the patient to consider the future. What do you expect in the future? What goals do you have for the time you have left—what is important to you? This step allows you to listen while the patient describes a real or imagined future. Most patients with advanced disease use this opening to voice their thoughts about dying—typically mentioning comfort, family, and home, as their goals of care. If there is a sharp discontinuity between what you expect and what the patient expects, this is the time to clarify. Listen carefully to the patient’s responses; most patients have thought a lot about dying, they only need permission to talk about what they have been thinking. Setting up the conversation in this way permits the physician to respond with clarifying and confirming comments such as: So what you’re saying is, you want to be as independent as possible and stay out of the hospital. Or, What you’ve said is, you don’t want to be a burden on your family.
  4. Discuss Hospice Care
    • Use language that the patient will understand; give information in small pieces. Never say, There’s nothing more we can do. “Nothing” is euphemistic and easily misinterpreted; to a patient “nothing” means abandonment. Summarize the patient’s goals as part of your introducing a discussion of hospice care: You’ve told me you want to be as independent and comfortable as possible. Hospice care is the best way I know to help you achieve those goals. Listen carefully to the response; patients often have a distorted view of hospice care, others have never heard the term. Ask what the term means to them; patients frequently describe hospice as a place to go to die or what you do when you give up. Probe for previous experiences or how they developed their point of view. Respond by describing hospice as A program that helps the patient and family achieve the goals you’ve just described; it’s a team of people that help meet the patient’s and family’s physical, psychological, social and spiritual needs. Offer to ask someone from the hospice program to meet with them to give information.
  5. Offer your recommendation
    • From what you’ve told me, I would recommend that hospice care begin so that I can do the best possible job in meeting the goals we discussed today. I think it would be best if we got hospice involved. Normalize your recommendation: I always ask hospice to get involved for my patients at this stage of their illness. Reinforce that entering hospice care does not mean that the patient can never return to the office or hospital for care, that the decision is revocable, and that the patient can continue seeing their current physicians.
  6. Respond to emotions
    • Strong emotions are common when discussing death. Typically the acute emotional response is brief. The most profound initial response a physician can make may be silence, providing a reassuring touch, and offering facial tissues (see Fast Fact #29).
  7. Establish a plan
  8. Summarize the plan: I’ll ask hospice representatives to come by to give information, then you and I can discuss it.

References

  1. von Gunten CF. Discussing Hospice Care. J Clin Oncol. 2002; 20:1419-1424.
  2. Casarett DJ, Quill TE. “I’m not ready for hospice”: Strategies for timely hospice discussions. Ann Int Med. 2007; 146:443-449.

Fast Facts and Concepts are edited by Drew A. Rosielle MD, Palliative Care Center, Medical College of Wisconsin. For more information write to: drosiell@mcw.edu. More information, as well as the complete set of Fast Facts, are available at EPERC: www.eperc.mcw.edu.

Version History: This Fast Fact was originally edited by David E Weissman MD. 2nd Edition published July 2005. Current version re-copy-edited March 2009; references updated.

Copyright/Referencing Information: Users are free to download and distribute Fast Facts for educational purposes only. von Gunten CF. Discussing Hospice, 2nd Edition. Fast Facts and Concepts. July 2005; 38. Available at: http://www.eperc.mcw.edu/EPERC/FastFactsIndex/ff_038.htm.

Disclaimer: Fast Facts and Concepts provide educational information. This information is not medical advice. Health care providers should exercise their own independent clinical judgment. Some Fast Facts cite the use of a product in a dosage, for an indication, or in a manner other than that recommended in the product labeling. Accordingly, the official prescribing information should be consulted before any such product is used.

ACGME Competencies: Interpersonal and Communication Skills, Patient Care

Keyword(s): Communication