Links—Advocacy/Public Information/Funders

"GERIATRICS AT YOUR FINGERTIPS"
http://www.geriatricsatyourfingertips.org
The American Geriatrics Society announced the 2003 release of "Geriatrics at Your Fingertips", now in its fifth edition. Updated annually, this book contains the most current, state-of-the-art information on caring for older adults. A "Brief Pain Inventory" has been added to the assessment tools. The chapter on pain includes the latest information from the 2002 AGS clinical practice guideline "The Management of Pain in Older Persons." The medication tables provide up-to-date drug information for appropriate prescribing and include special caveats and cautions to be observed when using medications in older persons. For more information regarding this book please log on to our website.

AACE Palliative Care Education Section
http://cancer-research.umaryland.edu/pc-web.htm
The Amedican Association for Cancer Education's Palliative Care Education section has been updated to include a Section summary from the 2001 AACE meetings (Los Angeles), which includes the project for 2002. The 2002 project involves assisting the National Cancer Institute (NCI) to comply with the recommendations of the 2001 Institute of Medicine Report regarding palliative care. The IOM report and recommendations are accessible from the Palliative Care Section of this website.

ABCD-Americans for Better Care of the Dying
http://www.abcd-caring.org
A coalition of citizens and professionals dedicated to social, professional, and policy reform aimed at improving the care system for seriously ill patients and their families

About.Com on Death and Dying
http://www.about.com
Extensive offering of information about various aspects of death and dying. Clicking on a topic results in sub-lists of both articles and related Web sites. Also offers access to bookstore, video store, newsletters, and special "spotlight" articles selected by the site's guide. (click on "d" and then "death and dying")

Administration on Aging
http://www.aoa.dhhs.gov
Information for professionals includes diversity issues; links to sites related to elder care.

Agency for Healthcare Research and Quality
http://www.ahcpr.gov/
Government agency designed to perform research and report its results on various health care issues. Long-term care and the elderly are two of its focal points. Web site reports on various research topics and provides news releases on some of the findings.

Aging with Dignity (Five Wishes^TM)
http://www.agingwithdignity.org
The Aging with Dignity Web site contains the Five Wishes, a document that helps the aging express their final wishes and, unlike other living wills and advanced directives, sees to all of a person's needs: medical, personal, emotional, and spiritual.

Alzheimer's Association
http://www.alz.org
Site of the Alzheimer's Association offers a great deal of information and news.

American Academy of Pain Management
http://www.aapainmanage.org
Has information for both professionals and consumers. It offers directories of accredited physicians and programs as well as articles on pain management. The national Pain Data Bank, which contains tools for assessment of various treatments, is included. Past issues of the organization's newsletter are available along with information about CME programs.

American Alliance of Cancer Pain Initiatives
http://www.aacpi.wisc.edu/
Organization that promotes nationwide cancer pain relief by supporting the efforts of state and regional voluntary, grassroots pain initiative organizations that provide education and advocacy to healthcare providers, cancer patients and their families.

GO TO http://wiscinfo.doit.wisc.edu/trc/ to find The Resource Center which supports the efforts of the American Alliance of Cancer Pain Initiatives by distributing educational materials, triaging requests, and providing general administrative support.

American College of Physicians-American Society of Internal Medicine Free End of Life Materials
http://www.acponline.org/ethics/patienteducation.htm
Under the auspices of the American College of Physicians-American Society of Internal Medicine, a working group of physicians and patient advocates has developed a set of informational materials for patients nearing the end of life. Brochures are available in groups of 50 or can be downloaded from the web.

Association for Death Education and Counseling
http://www.adec.org
The Association for Death Education and Counseling (ADEC) is a multi-disciplinary organization dedicated to improving the quality of death education and death-related counseling to and care-giving; to promoting the development and interchange of related theory and research; and to providing support, stimulation and encouragement to its members and those studying and working in death-related fields. ADEC provides opportunities for its members to develop professional identities as death educators and grief counselors while taking an active roles in educating the public on death-related issues.

Cancer Education Grant Program -- National Cancer Institute
http://cancertraining.nci.nih.gov
The Cancer Education Grant (R25E) Program (CEGP) of the National Cancer Institute (NCI) is a flexible, curriculum-driven program aimed at developing and sustaining innovative educational approaches that ultimately will have an impact on reducing cancer incidence, mortality, and morbidity, as well as on improving the quality of life of cancer patients.

CANCER.GOV
http://www.cancer.gov/researchfunding/announcements/symptommanagement
This Web page offers opportunities for cancer symptom management and palliative care research.

This new page announces funding opportunities and broad areas of encouraged research in cancer symptom management and palliative care at the National Cancer Institute and other Institutes and Centers within the National Institutes of Health. These announcements are coordinated through NCI's Palliative Care Working Group and can now be found in one place on the new Web page.

CARING CONNECTIONS

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.

Provides a variety of free resources on topics including:

• Advance care planning
• Caregiving
• Pain
• Financial issues
• Hospice and palliative care
• Grief and loss
  

Center to Improve Care of the Dying
http://www.gwu.edu/~cicd
The Center to Improve Care of the Dying is a unique, interdisciplinary team of committed individuals engaged in research, public advocacy, and education activities to improve the care of the dying and their families.

Children's Hospice International
http://www.chionline.org
Contains information about the movement to extend hospice services to children. It has information on hospice and various other services specific to the care of children as well as information on new projects being undertaken to improve care in this field.

Counseling for Loss and Life Changes
http://www.counselingforloss.com
Extensive offering of articles on grief and bereavement, FAQ's, discussion groups, memorials, weekly advice columns, and local and national resources. A separate section for children is also available.

Death with Dignity National Center
http://www.deathwithdignity.org
Contains a variety of information including: state and federal legislative news on right-to-die and end-of-life issues, international news, a complete glossary and timeline for the right-to-die movement, reading lists with direct links to many journal articles, links for patients, etc.

Foundation Center
http://fdncenter.org
The mission of the Foundation Center is to foster public understanding of the foundation field by collecting, organizing, analyzing, and disseminating information on foundations, corporate giving, and related subjects. Our audiences include grantseekers, grantmakers, researchers, policymakers, the media, and the general public.

Harvard Medical School Program in Palliative Care Education and Practice
http://www.hms.harvard.edu/cdi/pallcare/
The Program in Palliative Care Education and Practice offers intensive learning experiences for physician and nurse educators who wish to become experts in the clinical practice and teaching of comprehensive, interdisciplinary palliative care, as well as gain expertise in leading and managing improvements in palliative care education and practice at their own institutions.

Hospice Foundation of America
http://www.hospicefoundation.org
Hospice Foundation of America is a not-for-profit organization that provides leadership in the development and application of hospice and its philosophy of care. Through programs of professional development, research, public education and information, Hospice Foundation of America assists those who cope either personally or professionally with terminal illness, death, and the process of grief.

Intercultural Cancer Council
http://iccnetwork.org/cancerfacts/cfs7.htm
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.

International Observatory on End of Life Care
http://www.eolc-observatory.net/
This unique programme provides research-based information about hospice and palliative care provision in the international context. We present public health and policy data, as well as cultural, historical and ethnographic perspectives.

MERLOT
http://www.merlot.org/Home.po
Merlot is a free and open resource designed primarily for faculty and students of higher education. Links to online learning materials are collected here along with annotations such as peer reviews and assignments. MERLOT is also a community of people who are involved in education. Community members help MERLOT grow by contributing materials and adding assignments and comments. Many community members make their professional information available in MERLOT's member directory.

NACWLTC - National Alliance for Children with Life-Threatening Conditions
http://www.nacwltc.org
A searchable National Resource Center designed to help every community in America access, develop, implement and evaluate services for children with life-threatening conditions. NACWLTC supports Work Groups that network in five priority areas: clinical models, education, research, advocacy and policy and community resources groups.

National Guideline Clearinghouse
http://www.guideline.gov/
a public resource for evidence-based clinical practice guidelines.

National Hospice and Palliative Care Organization
http://www.nhpco.org/
Established in 1978, the National Hospice and Palliative Care Organization is a nonprofit organization whose mission is advocacy for the rights of terminally ill Americans. NHPCO is the largest nonprofit membership organization devoted exclusively to the promotion of hospice care in America. In addition to providing informational and educational materials to members, NHPCO provides information and referrals to the public.

National Palliative Care Research Center (NPCRC)

http://www.npcrc.org.

NPCRC is a national initiative committed to stimulating, developing, and funding

palliative care research directed at improving care for patients with serious illness

and their families.  Located at the Mount Sinai School of Medicine in New York City

where it receives direction and technical assistance, the Center will solicit research

proposals from investigators throughout the United States.

Palliative Care Matters

http://www.pallcare.info

The site is intended for health-care professionals working in palliative care or related fields. You are welcome to visit the pages as a Guest, but please consider registering, as this will bring several advantages. Download free version of Ian Back's Palliative Medicine Handbook at http://book.pallcare.info.