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Links—Miscellaneous Resources
Return to Links
American Bar Association--Advance Directive Information
http://www.abanet.org/aging/myths.html
This ABA site contains downloadable files listing Power of Attorney for Health Care and information regarding laws pertaining to surrogate decision makers by state.
American Medical Informatics Association
http://www.amia.org/
Site of the American Medical Informatics Association which is a nonprofit 501(c)(3) membership organization of individuals, institutions, and corporations dedicated to developing and using information technologies to improve health care.
Site offers a variety of helpful resources free of charge to the public and more for members.
American Pain Foundation
http://www.painfoundation.org
The American Pain Foundation (APF) is a leading nonprofit, consumer-based organization serving people with pain. The healthcare professional or educator working in the area of pain management, often seek information and useful tools for communicating with patients, their families and caregivers. The APF has a series of easy-to-understand, field-tested publications that are ideal for use in medical facilities and educational settings.
Annual Review of State Pain Policies
http://www.medsch.wisc.edu/painpolicy
The University of Wisconsin's website provides unrestricted access to a user-friendly database that contains the full-text of all pain policies for each state, a criteria-based evaluation of those policies and other resource materials. This project was supported by the Robert Wood Johnson Foundation.
Before I Die - PBS Online
http://www.thirteen.org/wnet/bid/
BEFORE I DIE: MEDICAL CARE AND PERSONAL CHOICES premiered on April 22, 1997. The program explores the medical, ethical, and social issues surrounding end-of-life care in America today. This Web companion piece features original reporting (REAL LIFE STORIES, SIDEBARS) by health writer Janet Firshein, 1995 Kaiser Media Fellow.
Center for Applied Ethics and Professional Practice
http://www.edc.org/CAE
Research and clinical practice activities focusing on improving clinical practice in bioethics, pain management, and end of life care
Chronic Pain Resource Center
http://www.chronicpainsource.com
The site provides access to interviews with experienced pain management professionals, and allows the visitor to download Power Point slide sets and images, as well as patient education materials. It also features a calendar of pain conferences and events and a shopping cart for ordering journal reprints.
City of Hope Pain/Palliative Care Resource Center
http://prc.coh.org
City of Hope Pain/Palliative Care Resource Center Nursing Research and Education Website. The purpose of the COHPPRC is to serve as a clearinghouse to disseminate information and resources that will enable other individuals and institutions to improve the quality of pain management. The COHPPRC is a central source for collecting a variety of materials including pain assessment tools, patient education materials, quality assurance materials, research instruments and other resources.
ClinicalTrials.gov
http://clinicaltrials.gov/
The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies.
The site includes links to other helpful resources:
- Understanding Clinical Trials - information explaining and describing clinical trials
- MEDLINEplus - authoritative consumer health information
- NIH Health Information - research supported by the National Institutes of Health
- healthfinder® - consumer health and human services information
Comprehensive Care Team (CCT) website
http://dgim.ucsf.edu/cct/
The Comprehensive Care Team (CCT) Project has just launched a website featuring artwork and stories about the end of life. The CCT is a demonstration project funded by the Robert Wood Johnson Foundation's "Promoting Excellence in End-of-Life Care" Program. The CCT worked with seriously ill outpatients who were still pursuing treatment of their underlying disease in the General Medicine Practice at the University of California, San Francisco. The website at http://dgim.ucsf.edu/cct/ presents a few of the images and stories from the CCT's "Art Experiential" project. In this project, patients, their caregivers, and their clinicians had an opportunity, via art, to share their thoughts and feelings about serious illness, interpersonal connection, and hope. The CCT is directed by Michael W. Rabow, MD and includes a large interdisciplinary team of clinicians and volunteers.
DIRECTtextBOOK
http://www.directtextbook.com/medical
This is a book price comparison site that allows you to search for the best prices on medical books at online booksellers like Barnes and Noble, Amazon and many more.
Palliative Medicine has recently been added as a category at our request.
Distance Education - Strategies and Tools and Distance Education - A Practical Guide
http://www.uidaho.edu/evo/dist11.html
This guide is one in a series developed by Barry Willis and the University of Idaho Engineering Outreach staff highlighting information detailed in Dr. Willis' books.
Diversity Rx
http://www.diversityrx.org
Clearinghouse of information on how to meet the language and cultural needs of minorities, immigrants, refugees and other diverse populations seeking health care...including policy and legal issues. Diversity Rx is supported by: The National Conference of State Legislatures (NCSL) Resources for Cross Cultural Health Care (RCCHC) Henry J. Kaiser Family Foundations of Menlo Park.
Do Your Proxy.ORG
http://www.doyourproxy.org/
Thinking about end-of-life issues can be very difficult, filling out the forms should be easy. Our ultimate goal is to increase the number of people in New York State (and the rest of the country) who are thinking about end-of-life issues and to make it easier for people to legally document their wishes. From the University of Rochester School of Medicine and Dentistry.
Dying Well
http://www.dyingwell.org
Dr. Ira Byock, author of "Dying Well" and past president of the American Academy of Hospice and Palliative Medicine, provides resources including full-text articles, and a "What's New" section.
Family Care America, Inc.
http://www.FamilycareAmerica.com
Some 54 million Americans suffer from some sort of disability that prevents them from going about activities of daily life unaided. Some 50 million Americans, representing almost one out of every four households, care for them-often at the expense of their own family, social, and professional lives. FamilyCare America exists to connect overworked, overtired, overstressed caregivers with the specific help they need, when they need it. Unlike national caregiving resources, which are too broad to meet specific needs; unlike other Web sites, which address just single aspects of caregiving; and unlike local resources, which are extremely hard to find, FamilyCare America boils down an overwhelming array of varied resources to those which meet caregivers' specific needs, in their own localities. In addition, FamilyCare America brings caregivers together interactively for mutual support, solution sharing, and discussion forums led by caregiving professionals. With integrated solutions for most caregiving situations-a frail, elderly parent, a spouse with a serious illness or a family member with a disability-FamilyCare America is caregivers' single, one-stop resource.
Growth House
http://www.growthhouse.org/
An international gateway to resources about life-threatening illnesses and end of life issues, including hospice and home care, palliative care, pain management, death with dignity, and bereavement
Health and Age.com - Novartis Foundation for Gerontology
http://www.healthandage.com
An educational web center to promote interaction between the public and healthcare professionals!
Health and Well Being of Rural Elders
http://www.ibiblio.org/stabley/fida1/projects/indexb.html
Offers FREE web-based patient cases to use as instruction material for geriatrics and geriatric medicine. First case: Meet Mrs. Jefferson - End of Life case currently in production.
Health Website Accredidation
http://webapps.urac.org/websiteaccreditation/portal/consumer/verify.asp
The URAC Health Web Site Accreditation Review requires providers of health content, tools, and Web site services to take a hard look at themselves and their operations. When you see that a provider has received URAC Accreditation, you can be assured that they have spent many months and hundreds of hours creating the infrastructure necessary to ensure the development of quality online health communities.
Healthlinks.net
http://www.healthlinks.net/index.html
A Free Service for Healthcare Consumers and Professionals Worldwide
HealthWeb
http://healthweb.org/index.cfm
HealthWeb is designed for educational purposes only and is not engaged in rendering medical advice or professional medical services. Any medical or other decisions should be made in consultation with your qualified health care provider.
Nursing Leadership Consortium for End-of-Life Care
http://www.palliativecarenursing.net
This new Web site is dedicated to end-of-life care improvements has been created by the Nursing Leadership Consortium for End-of-Life Care. The site allows nurses to share information with other professionals about initiatives and projects related to improving patient care at the end of life. The site features a wealth of end-of-life care resources.
On Our Own Terms
http://www.pbs.org/onourownterms
The full On Our Own Terms companion web site has launched! Offering a broad variety of resources on end of life care, visitors to the site can find:
- An indepth assortment of articles, written by experts in the field on aspects of end of life care ranging from management to grief counseling for children
- A guide to financial planning for end of life care
- A digital diary of a dying patient's hospice experience
- A debate between two leading doctors over the pros and cons of physician-assisted suicide
- Resources for art therapy for the dying and their loved ones
- Audio and video clips from the On Our Own Terms program
Online CME from Medical Computing Today
http://www.medicalcomputingtoday.com/0listcme.html
Medical Computing Today is "a not-for-profit Web site publishing peer-reviewed articles on computers and related technology for physicians and other health professionals. Electronic CME is an extensive, updated, and annotated list of links to online (Web) and software resources."
Pain and the Law
http://www.painandthelaw.org
Palliative Care Council of South Australia Multicultural Guidelines
http://www.pallcare.asn.au/mc/index.html
The Palliative Care Council of South Australia has produced a book containing multicultural treatment guidelines to end-of-life care.
Pharmacy Benefits Management-Strategic Healthcare Group Department of Veterans Affairs
http://www.vapbm.org/PBM/menu.asp
News alerts, criteria for drug use, guidelines, and drug reviews.
Project on Death in America-Library Catalog
http://library.soros.org/dbtw-wpd/library_pdia.htm
This is the online catalog of the holdings of the Library of the Project on Death in America (PDIA) in New York . The library catalog is provided here for reference purposes. The approximately 600 documents in the PDIA Library collection in New York include primarily books, non-governmental organization reports, and videos concerned with such topics as death and dying, bereavement, grief, mourning, and palliative care. The entry for each document or video includes the Library of Congress call number and/or ISBN to facilitate finding the documents and videos in other libraries, or ordering them from book or video dealers.
Robert Wood Johnson Foundation
http://www.rwjf.org
The Robert Wood Johnson Foundation, based in Princeton, NJ, is the nation's largest philanthropy devoted exclusively to health and health care. It became a national institution in 1972 with receipt of a bequest from the industrialist whose name it bears, and has since made more than $2 billion in grants.
The George Washington Institute for Spirituality and Health
http://www.gwish.org/index.htm
GWish will strive to be a leading organization on educational and clinical issues related to spirituality and health. The impact of GWish programs will touch medical education, professional education, and clinical programs on the local, national, and even international levels.
Virtual Hospital
http://www.vh.org/
The Virtual Hospital is a digital health sciences library created in 1992 at the University of Iowa to help meet the information needs of health care providers and patients. The goal of the Virtual Hospital digital library is to make the Internet a useful medical reference and health promotion tool for health care providers and patients. The Virtual Hospital digital library contains hundreds of books and brochures of health care providers and patients.
Zen Hospice
http://www.zenhospice.org
Inspired by a 2500 year-old tradition, Zen Hospice Project provides a spectrum of innovative programs including volunteer services, residential care, and trainings which seek to cultivate wisdom and compassion through service
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